C3G Stories | Become a WeC3G Star
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Sharing Stories to Shine the Light on C3G

C3 glomerulopathy (C3G) is a rare condition. It’s very likely that you’ve never met another person with your disease. This may make it easy to feel isolated and alone as you continue through your journey.

To overcome this, patients and caregivers from around the world have offered to share their personal experiences. This group of WeC3G Stars share their personal stories of pain and fear, but also of courage, strength, and hope.

You’re encouraged to read their inspiring stories and consider sharing your own. Each new voice helps to shine the light on C3G.

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Become a WeC3GTM Star by sharing your story about living with C3G.

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Think about how you have managed your diagnosis, the signs and symptoms over time, and all of the appointments with your care team.

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Sharing your experience can help others who are starting or managing their own journey. It can also inspire them to share their stories and help to build the community of WeC3G Stars, shining the light on C3G.

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Rising Above the Initial Shock of a Dense Deposit Disease Diagnosis

Rising Above the Initial Shock of a Dense Deposit Disease Diagnosis

It's only been a few months since our 11-year-old daughter was diagnosed with dense deposit disease. Despite her diagnosis, we wanted to maintain some sense of normalcy in her daily life. That's why our motto is to stay positive and take things a day at a time.

Achieving My Dreams Despite Dense Deposit Disease

Achieving My Dreams Despite Dense Deposit Disease

Imagine being a young adult at a pivotal time in your life, getting ready for college, when you're diagnosed with a disease that is slowly ruining your kidneys. For some, this would be devastating news. For Isabel, this was ammunition to fight even harder to achieve her dreams. 

My Family’s Fight Against C3G

My Family’s Fight Against C3G

When Lysa’s son was diagnosed with C3 glomerulopathy (C3G), she knew she needed to do something to make a difference for him and for other kids battling the same disease.

Discover what she’s done to be a support system for her son and for other families in the C3G community.

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Join WeC3G Now to Share Your Story

We encourage you to share your story and help build the WeC3G community. Complete the registration form and let the WeC3G team know you are interested in sharing your story with the community.

A WeC3G team member may contact you to learn more about your journey.

JOIN NOW
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Learn more about the complement system, the kidney, and signs and symptoms to gain a better understanding.

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Learn more about managing C3G now and in the future.

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