Privacy Policy |

Achillion Pharmaceuticals, Inc. Privacy Policy

Achillion Pharmaceuticals, Inc. (“Achillion”) is committed to protecting the privacy and security of your personal information. This Achillion Pharmaceuticals Privacy Policy (the “Privacy Policy”) describes how we may collect, use and disclose your personal information when you visit the Achillion website at (the “Website”) to learn more about C3 Glomerulopathy (C3G), a rare, chronic disease affecting the kidneys. This Privacy Policy does not address personal information that you provide to us in other contexts (e.g., through a business relationship not handled through the Website).

Acceptance of Privacy Policy

By using the Website, you signify your acceptance of this Privacy Policy. If you do not agree to the terms of this Privacy Policy, please do not use the Website. Your continued use of the Website following the posting of changes to this Privacy Policy will mean that you accept those changes.

Personal Information We Collect

Achillion collects your personally identifiable information (“PII”) through the Website when you choose to provide such information, such as when you (i) register with our services, (ii) access various content or features, (iii) submit photos, videos and other content directly, (iv) or directly contact us with questions or feedback. Achillion also collects your IP address and web log data.

Use of Personal Information

We will use your PII only (i) to operate the Website, (ii) to provide Achillion products and related services to you, (iii) to address your requests for information about C3G, (iv) to contact you about events we think might interest you; (v) to maintain or administer the services, perform business analyses, or for other internal purposes to improve the quality of our business and the products and services we offer, (vi) to publish stories, comments, photos, videos and other information posted in our online features or sent directly to us, (vii) to perform market research, or (viii) as otherwise described to you at the point of collection or pursuant to your consent. If you provide your email address, we may send you administrative and promotional emails. Where required in the relevant jurisdiction, we will obtain your consent before sending you promotional emails. If you wish to opt out of promotional emails, you may do so by following the “unsubscribe” instructions in the email.

We use your personal information for the following key purposes:

  • for legal purposes: we may use and share personal information for legal purposes, including financial, regulatory, tax and other legal obligations and to respond to governmental or regulatory requests or subpoenas or for litigation purposes;
  • for our legitimate business interests and those of a third party: we may use your personal information to manage our legal, regulatory, financial and business requirements, including obtaining legal advice, in the course of disputes and litigation, internal and/or regulatory investigations;
  • for our business purposes: we may use your personal information to help us efficiently operate the Website, to count and recognize visitors to the Website, to enable certain features on the Website and for other purposes related to managing our business;  

  • for other purposes: subject to applicable law, we may use your personal information for additional purposes in connection with the Website, where you have provided your prior consent.

Disclosure of Personal Information

Achillion will not sell, rent, license, or trade your PII with third parties for their own direct marketing use unless we receive your express consent to do so. Unless you give us permission to do so, we will not share your PII with third parties other than as specified in this Privacy Policy.

Disclosures to Third Parties Assisting In Our Operations. We may share your PII under confidentiality agreements and any legally required data processing agreements with other companies that work with, or on behalf of, Achillion to provide products and services, such as those who are providing email or mail solutions, providing cloud hosting services, analyzing data and usage of the Website, or providing support and maintenance services for the Website, as well as legal, regulatory, audit and other professional advisors. These companies may use your PII to assist us in our operations or for our legitimate business interests. However, these companies do not have any independent right to share this information.

Disclosures Under Special Circumstances. We may provide information about you, including PII, to respond to subpoenas, court orders, legal processes or governmental regulations or inquiries, or to establish or exercise our legal rights or defend against legal claims. We believe it is necessary to share information in order to investigate, prevent or take action regarding illegal activities, suspected fraud, situations involving potential threats to the physical safety of any person, or as otherwise required by law.

Other Parties With Your Consent or At Your Direction. In addition to the disclosures described in this Privacy Policy, we may share information about you with third parties when you expressly consent to or request such sharing.

Business Transfers. We may share your PII with other business entities in connection with the sale, assignment, merger or other transfer of all or a portion of Achillion’s business to such business entity. We will require any such successor business entity to honor the terms of this Privacy Policy.

Retention of Personal Information. Achillion will retain your PPI only for as long as is reasonably necessary to achieve the purposes for which it is collected, including for the purposes of satisfying any legal requirements. To determine the appropriate retention period for PII, we consider the amount, nature and sensitivity of the PII, the potential risk of harm from unauthorized use or disclosure of your PII, the purposes for which we process your PII and whether we can achieve those purposes through other means, and applicable legal requirements.

Automatically Collected Information and Anonymous Information

Each time you visit the Website, Achillion collects some information to improve the overall quality of your online experience.

Aggregated Data. Achillion collects aggregate queries for internal reporting and also counts, tracks, and aggregates the visitor’s activity into Achillion’s analysis of general traffic-flow at the Website. To these ends, Achillion may merge information about you into aggregated group data. In some cases, Achillion may remove personal identifiers from PII and maintain it in aggregate form that may later be combined with other information to generate anonymous, aggregated statistical information. Such anonymous, group data may be shared on an aggregated basis with Achillion’s affiliates, business partners, service providers and/or vendors; if it does so, Achillion will not disclose your individual identity.

Web Server Logs and IP Addresses. An Internet Protocol (“IP”) address is a number that automatically identifies the computer or device you have used to access the Internet. The IP address enables our server to send you the web pages that you want to visit, and it may disclose the server owned by your Internet Service Provider. Achillion may use IP addresses to conduct Website analyses and performance reviews and to administer the Website.

Cookies. Cookies are pieces of information that a website transfers to a user’s computer for purposes of storing information about a user’s preferences. Cookies in and of themselves do not personally identify users, although they do identify a user’s computer. Many websites use cookies as a standard practice to provide useful features when a user visits the website and most web browsers are set up to accept cookies. Achillion uses cookies to improve your online experience when visiting the Website. You can set your browser to refuse cookies, but some portions of a Website may not work properly if you refuse cookies. A session cookie is one that exists for the time period that your browser is open. A persistent cookie is one that is saved on your device/computer even after the browser is closed. Like many websites, we may use both session cookies and persistent cookies.

Achillion has relationships with third-party advertising companies to place advertisements on this website and other websites, and to perform tracking and reporting functions for this website and other websites. These third-party advertising companies may place cookies on your computer when you visit our website or other websites so that they can display targeted advertisements to you. These third-party advertising companies do not collect Personal Data in this process, and we do not give any Personal Data to them as part of this process. However, this Privacy Statement does not cover the collection methods or use of the data collected by these vendors. For more information about third party advertising, please visit the Network Advertising Initiative (NAI) at

Web Beacons. Some of the Website’s web pages may use web beacons in conjunction with cookies to compile aggregate statistics about Website usage. A web beacon is an electronic image (also referred to as an “action tag,” “single-pixel,” or “clear GIF”) that is commonly used to track the traffic patterns of users from one web page to another in order to maximize web traffic flow and to otherwise analyze the effectiveness of the Website. Some web beacons may be unusable if you elect to reject their associated cookies.

Response to “Do Not Track” Signals

Some web browsers may transmit "do-not-track" signals to the websites with which the user communicates, although web browsers incorporate and activate this functionality in different ways, and it is not always clear whether users intend for these signals to be transmitted. There currently is disagreement, including among participants in the leading Internet standards-setting organization, concerning what, if anything, websites should do when they receive such signals. Achillion currently does not take action in response to these signals, but, if and when a standard is established and accepted, we may reassess how to respond to these signals.

Children's Privacy Protection

Under Age 13. Achillion does not knowingly collect or retain personally identifiable information about persons under 13 years of age. Any person who provides their personal information to Achillion via the Website represents that they are 13 years of age or older. The Website does not knowingly solicit or collect personally identifiable information online from children under the age of 13 without prior verifiable parental consent. If we learn that a child under the age of 13 (or such legally required higher age) has submitted personally identifiable information online without parental consent, we will take all reasonable measures to delete such information from our databases and to not use such information for any purpose (except where necessary to protect the safety of the child or others as required or allowed by law). If you become aware of any personally identifiable information we have collected from children under 13, please contact us at

Under Age 18. Minors under 18 years of age may have the PII that they have provided to us through the Website deleted by contacting us at and requesting deletion. Please note that, while we make reasonable efforts to comply with such requests, deletion of your personal information does not ensure complete and comprehensive removal of that data from all our systems and back-up systems.

Privacy Settings/Opt Out/Changes/Access

Under applicable data privacy laws, you have the right: (i) to request that your PII be removed from our database, (ii) to request that a copy of the PII that you provide to us is provided to another organization, (iii) to object to the use of your PII by us, or (iv) to request that your PII is updated, and can do so by contacting us at If requested, we will promptly verify and delete your account and you will no longer receive emails from Achillion. Your removal from the mailing list or database will not remove records of past transactions or delete information stored in our data backups and archives where we are required to keep your data for legitimate business or legal requirements. Data on past transactions and data stored in backups and archives will be deleted in the normal course of our business. You have the right to access or, if required by applicable laws, receive a copy of your PII held by us by making a written request by sending an email to the contact email address below.

In addition, you have the right to make a complaint to the relevant supervisory authority in your home country if you have concerns about Achillion’s handling of your PII.


The Website and materials available through this Website may contain links to other websites. Achillion is not responsible for the privacy practices or the content of those websites. Users should be aware of this when they leave our Website, and review the privacy statements of each third-party website. This Privacy Policy applies solely to information collected by the Website.


Achillion understands that storing our data in a secure manner is essential. Achillion stores PII and other data using reasonable physical, technical and administrative safeguards to secure data against foreseeable risks, such as unauthorized use, access, disclosure, destruction or modification. Please note, however, that while Achillion has endeavored to create a secure and reliable website for users, the confidentiality of any communication or material transmitted to/from the Website or via e-mail cannot be guaranteed.

Website Visitors from Outside the United States

Achillion and its servers are located in the United States and are subject to the applicable laws of the United States (where data privacy laws are less stringent than in the European Union and some other jurisdictions). Some of the recipients of PPI as specified above may be located in countries (including the United States) that do not provide a level of data protection equivalent to that set forth by the European Union and some other jurisdictions. Achillion will take appropriate steps to ensure that such recipients act in accordance with applicable law. To the extent that Achillion transfers PII to recipients which are located outside the European Union, Achillion will implement appropriate contractual measures to secure such transfer, in compliance with applicable law. If you choose to access or use the Services, you consent to the transfer, use and disclosure of information in accordance with this Privacy Policy and subject to such applicable laws.

Changes to this Privacy Policy

This Privacy Policy may be revised from time to time as we add new features and services, as laws change, and as industry privacy and security best practices evolve. If we update the Privacy Policy, we will let you know about our changes we consider material by placing a note on the relevant web page you use to access the Services or you may receive an email with notification of the updated Privacy Policy. By accessing or using the Website or the Services after we have placed such a notice, you consent to the new practice(s) identified in the update. The most current version of the Privacy Policy will always be available on the Website at You can check the "effective date" posted at the top to see when the Privacy Policy was last updated. Small changes or changes that do not significantly affect individual privacy interests may be made at any time and without prior notice.


If you have any questions about this Privacy Policy or about our handling of your information, please contact the WeC3G Team at

Effective Date: September 15, 2018